Telling my epilepsy story for Purple Day 2014

March 26th was Purple Day – the international day of epilepsy awareness – and I was privileged to be able to share my story in the Birmingham Mail that day.

I talked about the shock of being diagnosed with epilepsy at the age of 20 and some of the feelings I wrestled with at the time and later, as well as the precautions I took to minimise the risks to my unborn child when I was planning to become a mum.

Ever since it went to press I’ve been thinking of other things that I wish I’d said, so here are a few extras for you:

I got some positive comments on the Mail’s Facebook page, although a few people seemed to think that I couldn’t truly speak about epilepsy as my seizures are controlled. To which I say, yes, I know I am among the fortunate 52 per cent of people with epilepsy who live seizure-free – and I know that many people face daily struggles that I am lucky to avoid.

However, I hope that my story can be seen as a giving a positive take on living with epilepsy, and shining a light on an often misunderstood condition, but one which is surprisingly common (one in every 103 people in the UK has epilepsy).

Click here to read the full feature.

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